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Tilly has Dravet Syndrome, a rare genetic epilepsy which causes seizures that could kill her. Their request to Birmingham Children's Trust for respite was refused with the trust suggesting training grandparents to help, even though the family had told them that was not possible.
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They can even go direct to the Twig's factory in the city of Shawano to have the same bottles refilled. Some are vintage ones still going strong after 60 or so years.